A woman who could not urinate for 14 months due to a rare condition shares history

She Adams was at a "break point" until she was finally diagnosed with a rare disorder.


A healthy urinary relief is vital for our overall well-being because it serves as a drainage system from our body, which helps eliminate waste and fluids that need. But the feeling of normality of a woman was rinsed in the toilet when she could not pee for 14 months, causing changes that change life. She adams was a 30 -year -old healthy living in eastern London, who suddenly couldn't urinate, no matter how much she drank. After several emergency trips and several visits to the doctor, Adams was finally diagnosed with a rare condition called Fowler syndrome and shares his history.

What to know about Fowler syndrome

She Adams / Instagram

Fowler syndrome is a rare condition that generally affects young women in their twenties and thirties. The condition can be difficult to diagnose and symptoms include painful or difficult urination, back pain, pain on the bladder and not be able to spend urine for hours. According to Community of bladder and intestine, The condition is "a cause of urinary retention (inability to pass water normally) in young women. Urinary retention in young women is not common but can be quite debilitating. The anomaly lies in the urethral sphincter ( The muscle that keeps you continent). The problem is caused by the failure of the sphincter to relax to allow the urine to be transmitted normally. There is no neurological disorder associated with the condition and until Half of women have associated polycystic ovaries. "

Adams didn't think something is wrong at first

She Adams / Instagram

In 2020, the London -based content creator rejected the concerns that something serious could be bad. "I woke up and I couldn't go at all and I had never had it before," she said Mylondon . "I thought it's really strange, but I continued with the day, and I tried to forget it. I left it for about an hour and I thought I can't go. I am at home, the tap is running, I could not be more relaxed. I tried everything. "Over the day, she became more alarmed and went to St. Hospital. Thomas in London where she was told that she had 800 ml in her bladder. Usually the urinary bladder can contain up to 500 ml of urine in women and 700 ml in men, according to the National Health Institutes (NIH).

Doctors gave Adams an emergency catheter

She Adams / Instagram

When it was discovered that Adams had so much urine in his bladder, the doctors gave him an emergency catheter, which is a tube inserted in the bladder and drains the urine. After four hours in the hospital, the doctors told Adams that they could either remove the catheter and see if she could urinate by herself, or go home and return to the hospital in three weeks. "They took it out and I still couldn't go there," said Mylondon. "I was taught to self-catheter by a nurse, but she did it very quickly, and I couldn't do it myself." The doctors told him that "it's just life now" and that his next meeting would be in three months.

Adams was said that she was going "well in a few weeks"

She Adams / Instagram

A nurse who saw Adams realized that something major happened and urged her to obtain another opinion, however, the experts did not take her condition seriously. "The nurse begged the consultant to see me that day, so I saw them at the end," she said. "They told me" you drank too much ", but I barely drank nothing. They then said" you are also an anxious young girl, I'm sure it will go in a few weeks. ""

Adams went 14 months without urinating alone and had no diagnosis

She Adams / Instagram

After the Runaround, Adams did not return to the clinic for 14 months. During this period, she herself administered catheters, but returned when she had a problem with the catheter. It was then that she finally received a diagnosis. "I was told how I probably suffered from Fowler", New York Post reports. "I was told about the treatment options that were minimal-we tried medication, but that made no difference," she said.

Treatment of sacred nerve stimulation

She Adams / Instagram

According to Job, Adams told him that "the only option" was to go through stimulation of the sacred nerve (SNS), a "therapy that solves the communication problem between the bladder / intestine and the brain which can cause symptoms", according to THE Community of bladder and intestine. In January 2023, Adams followed the SNS procedure and she shared: "It did not change life, but it can help." She added: "I would cathete much less, about 50% less. It made my life easier, after two years of hell, that's all I can ask," she said. "I'm fine, I'm more and more to fowler. I am grateful for the difference, I feel better than me." AE0FCC31AE342FD3A1346EBB1F342FCB

Adams remains positive

She Adams / Instagram

Adams’s life has changed forever, but it uses its history to help educate the disease. "Fowler's is being research and unknown," she told Mylondon. "I really want to pass the word.. There is hope for the people he just comes to."


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