Céline Dion's sister gives a dark update on the rare singer disease
The artist "because you love me" has received a diagnosis of stiff person syndrome.
In December, Celine Dion revealed that It had been diagnosed With the rare neurological condition syndrome of the steep person. Now his sister has shared an update on her health, and it's heartbreaking. In an interview The Montreal Journal ,, Claudette Dion opened up to how their family supports Céline thanks to her diagnosis, but shared that they had not been able to find a medication that helps the star for the moment. But, she added that the winner of a Grammy has not lost hope that her health will improve.
Read the rest to see what Claudette had to say and to find out more about Céline's rare state.
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Céline shared her diagnosis last year.
In December 2022, Céline talked about her diagnosis In a video published on Instagram. After explaining that she did not feel ready to open before, she said: "Recently, I was diagnosed with a very rare neurological disorder called the raid person's syndrome, which affects something like a on a million people. While we are always learning this rare condition, we now know that this is what has caused all the spasms I have. " AE0FCC31AE342FD3A1346EBB1F342FCB
She continued: "Unfortunately, these spasms affect all aspects of my daily life, sometimes causing difficulties when I walk and not allowing me to use my vocal cords to sing as I am used to it."
Céline explained that she would not reddemn her tour, which was to start in February. However, she said that she hoped she could occur live once again.
"I have a large team of doctors who work next to me to help me improve myself, and my precious children who support me and give me hope," she added. "I work hard with my sports medicine therapist every day to strengthen my strength and my ability to achieve again."
Syndrome of the steep person is very rare.
According to the Cleveland Clinic, Raid person syndrome is "a rare chronic condition that causes muscle stiffness and painful muscle spasms. The severity of symptoms varies from person to person. There is no remedy for SPS, but treatment can help manage Symptoms and slow down the progression of syndrome. "
As Celine said in her video, the institution also notes that the syndrome of the steep person is rare and affects only one person out of a million.
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One of Céline's sisters moved with her.
Claudette said The Montreal Journal ( via Page six ) that their other sister, Linda Dion , moved to Céline to provide her with additional support. The Canadian singer also lives with her three sons - 22 years old René-Charles Angélil and 12 -year -old twins Whirlwind And Nelson Angélil - Who she welcomed with the late husband René Angélil .
"When I call her and she is busy, I speak to my sister Linda who lives with her and tells me that she is working hard," said Claudette. "She listens as much as possible the best researchers in the field of this rare disease."
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His condition has not improved much.
However, Claudette also explained that they had not seen much improvement in Celine's condition because they did not find the right treatment lesson. "We cannot find any drugs that work, but having hope is important," she said.
His sister also said that Céline had made the right decision to stop shooting, at least for the moment.
"I honestly think that she especially needs to rest," said Claudette. "She always goes beyond, she always tries to be the best and the top of her game. At one point, your heart and your body try to tell you something. It is important to listen to it."
She added: "It is innate for her, she is disciplined in all areas of her life."
Celine recently released new songs.
Even if she takes live performance vacation, Celine released new music for fans and appeared in a film. She played as a fictitious version of herself in Love once again , which was created in May. The shooting took place before Céline shared her diagnosis. For the soundtrack of the film, the 55 -year -old man recorded five new songs.
Celine promoted the film and her new songs on social networks, and she has also published looks at great moments in her career. The singer shared another health update in May when she canceled the rest of his world tour of courage .
"I'm really sorry to disappoint you again," she wrote in an Instagram legend. "I work very hard to strengthen my strength, but the tour can be very difficult even when you are 100%. It's not just for you to continue postponing the shows, and even if it breaks my heart, it It is preferable that we cancel everything now until I am really ready to become on stage. I want you to know all, I don't give up ... and I can't wait to see you again! "
